AFL trying to ‘divide and conquer’ over brain bank endorsement, concussion expert says

A number one concussion specialist has accused the AFL and the gamers’ union of trying to “divide and conquer” by hesitating to endorse the Australian Sports activities Mind Financial institution (ASBB) as the first place for gamers to donate their brains, regardless of a direct suggestion to take action by a coroner.

Greater than a 12 months after the advice by the coroner who oversaw the Danny Frawley inquest, the AFL says it's “effectively progressed”indiscussions with each the ASBB and the Sydney Mind Financial institution, with a view to deciding on one or the opposite – or each – as companions for its mooted AFL/AFLPA mind financial institution donation program.

However Dr Adrian Cohen, an skilled in traumatic mind damage, director of Headsafe and senior lecturer on the College of Sydney, has alleged the governing physique is overlooking the ASBB’s “particular experience” and unrivalled financial institution of sports activities mind tissue as a result of it “isn’t aligned” with the AFL’s method to concussion analysis.

In February, 2021, Victorian coroner Paresa Spanos handed down her findings into the demise of the St Kilda nice Frawley, confirming a postmortem evaluation of his mind discovered he had low-stage continual traumatic encephalopathy, a mind illness linked to repeated blows to the top.

That prognosis was made by way of an post-mortem carried out by the ASBB, to which Frawley’s household donated his mind after the previous Richmond coach took his personal life following a extreme decline in psychological well being.

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The coroner really helpful ‘that the AFL actively encourages gamers, and their authorized representatives after their demise, to donate their brains to the Australian Sports activities Mind Financial institution …’ Photograph: Scott Barbour/AAP

Frawley’s mind is considered one of 21 to have been examined by the ASBB because it was arrange in 2018 particularly to grasp CTE and different mind pathology related to repetitive head damage in sport and elsewhere. Others embody these of Shane Tuck, Polly Farmer and Andrew Macpherson, together with two nameless former skilled rugby league gamers – all of whom had been discovered to have CTE lesions on their brains.

Over the course of 4 years, the ASBB – established by the neuropathology division at Sydney’s RPA hospital in partnership with the Mind and Thoughts Centre on the College of Sydney and the Concussion Legacy Basis in the US – has grow to be the pre-eminent mind financial institution on this house, having thus far acquired greater than 600 donation pledges from newbie and professional sportspeople.

The coroner really helpful “that the Australian Soccer League actively encourages gamers, and their authorized representatives after their demise, to donate their brains to the Australian Sports activities Mind Financial institution so as to make a significant contribution to analysis into continual traumatic encephalopathy and thereby enhance the security of future generations of footballers and others engaged involved sports activities.”

In a proper response to the coroner’s courtroom of Victoria, the AFL’s head of authorized and regulatory, Stephen Meade, mentioned the governing physique proposed to work with the AFL Gamers Affiliation to create “a structured and ongoing program of lively encouragement of Australian footballers to donate their brains to analysis” however wouldn't endorse the ASBB.

“At this time limit, the AFL doesn't [contrary to the coroner’s AFL recommendation] conform to the lively encouragement of the donation of brains to the Australian Sports activities Mind Financial institution to the exclusion of different mind banks in Australia,” Meade wrote within the letter dated 24 Could, 2021.

Meade wrote that the AFL and the AFLPA could nominate “a number of mind banks”.

The AFLPA despatched a separate response, additionally on 24 Could, 2021, from its normal supervisor of authorized and participant affairs, James Gallagher, who mentioned it was “supportive of ASBB’s work” however “imagine it's essential to undertake additional investigation into all mind banks”.

When contacted this month by Guardian Australia, an AFL spokesperson mentioned it was in persevering with discussions with each the ASBB and the Sydney Mind Financial institution, “which might see mind donation and analysis as essential elements of the AFL’s deliberate longitudinal examine”.

“These discussions are effectively progressed, and we anticipate having the ability to make an extra announcement in relation to the deliberate AFL/AFLPA mind financial institution donation program within the coming months,” the spokesperson mentioned.

The AFLPA mentioned this week it had inspired gamers, by its alumni communications, “to donate their brains to analysis by Australian mind banks, together with the Australian Sports activities Mind Financial institution and the Sydney Mind Financial institution, in an effort to allow a constant method to mind donation by former AFL and AFLW footballers”.

The AFLPA declined to supply Guardian Australia with a replica of its alumni communications, citing the necessity for confidentiality.

It's unclear who would oversee the AFL/AFLPA mind financial institution donation program or who would take the lead on any future undertaking on the SBB – ought to or not it's used. The SBB instructed Guardian Australia talks are below approach with the AFL however declined to remark additional.

It's also unclear, ought to the AFL associate with each, how it will guarantee a streamlined method each when it comes to uniform analysis and readability of route for gamers and their households registering to donate.

“The AFL wish to use a special mind financial institution to divide and conquer,” Dr Cohen mentioned. “As in, ‘let’s not simply have one place the place all the data is collated, one authority – notably one which isn’t aligned with the way in which we predict – let’s have a number of’. And I’m positive they'd give cash to a number of [brain banks] simply so the Australian Sports activities Mind Financial institution doesn’t get to be the only real authority.

“Sure, the Sydney Mind Financial institution has mind tissue. They don’t have sports activities mind tissue. They don’t have any particular experience in that.”

The extremely revered SBB, established in 2009 and operated by not-for-profit analysis institute Neuroscience Analysis Australia (NeuRA), holds greater than 700 brains and works with quite a few analysis packages throughout a number of neurodegenerative problems.

It just lately accomplished a yet-to-be-published examine analyzing the prevalence of CTE in its mind financial institution inhabitants. Nonetheless, in contrast to the ASBB, it doesn't routinely retrieve brains interstate, nor does it difficulty clinically accredited stories.

“We difficulty accredited scientific stories, we don’t simply difficulty analysis stories, which don’t have the identical type of standing,” mentioned Dr Michael Buckland, the ASBB’s founder and govt director, and head of the division of neuropathology at Sydney’s Royal Prince Alfred hospital.

“We've a confirmed monitor document in CTE diagnostics and the flexibility to facilitate mind donations throughout Australia. We might hope the AFL would work with us. And that, in actual fact, was the said want of Polly Farmer’s household after they went public, that the AFL would work with us to resolve the issue of CTE.”

The Sydney Mind Financial institution’s main sport connection is a partnership with the Retired Skilled Rugby Gamers mind donor program. That program is run by Newcastle College and headed up by the neuropsychologist Affiliate Professor Andrew Gardner.

In 2019, the NRL offered Gardner with $250,000 in funding for the related Retired Skilled Rugby League Gamers Mind Well being Examine, carried out in partnership with the Spaulding Analysis Institute at Harvard Medical College.

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